Social Media Content Creation for Rare Disease Nonprofit (3-Month Content Build)

We’re looking for a strong and experienced social media content creator to build three months of ready-to-publish content that we can immediately put into action. This is a hands-on, execution-focused project. While strategy will play a role, the priority is creating high-quality, mission-driven content at scale. Over the course of this multi-week project, the volunteer will help us turn our story, research, and community into a consistent, compelling social media presence.

Scope of Work
1. Quick Audit (Light + Focused)
• Identify key gaps and opportunities
• Review a few industry-leading peer organizations for inspiration
• Provide concise recommendations to guide content

2. Content Framework & Calendar
• Establish clear content themes and cadence
• Build a 3-month content calendar aligned to priorities:
o Research updates
o Family and patient stories
o International community awareness
o Community engagement
o Fundraising and awareness

3. Core Deliverable: 3 Months of Content
• Create three full months of social media content (primary focus)
• Integrate existing website/organization into social media content plan and develop novel content
• Deliver a complete, ready-to-use content library, including:
o Post copy (platform-appropriate)
o Visual direction or asset suggestions
o Hashtags and engagement prompts
• Content should be:
o Clear, engaging, and emotionally compelling
o Accessible while maintaining scientific integrity
o Consistent with our voice and mission
o Centering the patient voice and experience whenever possible

Deliverables
• Brief audit summary
• 3-month content calendar
• Three months of fully developed, ready-to-publish social media posts

Ideal Volunteer
You are:
• A doer with strong content creation skills (not just strategy)
• A compelling storyteller and writer
• Experienced in social media, ideally with nonprofits or healthcare
• Comfortable translating complex topics into engaging content
• Able to work independently and collaborate with a small team
• A professional who can show us similar completed projects and participate in a brief Zoom interview process

Organization Overview: KIF1A.ORG is a patient-led, global nonprofit working to improve the lives of individuals with KIF1A Associated Neurological Disorder (KAND) and accelerate research toward a cure. We unite families, researchers, clinicians, and industry partners to drive progress for this ultra-rare, progressive condition.

Content & Story Access
Curated access to patient and family stories, including approved quotes, background context, and storytelling guidance
A library of existing website content, research updates, and past communications to draw from
Clear guidance on voice, tone, and messaging priorities, ensuring content remains consistent and respectful of the community

Visual & Brand Assets
Access to a centralized folder of brand-approved assets, including:
Logos, fonts, and brand guidelines
Existing photography of families, events, and community moments (with usage permissions clearly defined)
Prior social media graphics and templates for inspiration or reuse
Direction on visual identity and accessibility standards (e.g., readability, color contrast, inclusive representation)