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Copywriting

Relevant Skills

Content Management Marketing Management Social Media Marketing

Published Date

Posted March 05, 2026

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Disease & Medical Research

Copywriting: Social Media Content

Project

Remote

EB Research Partnership

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We’re seeking a volunteer to write 6-12 social media posts for our nonprofit. We primarily use Facebook, Instagram, and LinkedIn. These posts will cover a nonprofit event that is taking place on April 19, 2026. During that event, a separate volunteer will be taking iPhone photos and video. With those assets, the volunteer for THIS social media project will create posts, in the form of FB posts, IG photos/stories/reels, and possibly LinkedIn posts.

The posts that you create will help us raise awareness of EB and EBRP across social media channels and donor communications. We hope that the posts will show viewers how great the event was and compel them to support the cause. Ultimately, we want to encourage people to contribute to funding treatments, and one day, a cure for EB. By seeing how much momentum is behind this cause/event through the campaign, we also hope that the EB patient community will feel supported and loved.

We will provide you with examples of our previous social media posts, the specific number of posts and topics we’d like, as well as key points for each. Our volunteer will be provided with information on our key audiences and organizational key messages. They will also be provided with the photos/videos taken at the 4/19/26 event, which they will incorporate into the posts.

EB Research Partnership

Location

New York, NY

Website

https://ebresearch.org

Member Since

Feb 2026

Completed Taproot Plus Partnerships

Organization Mission

EB Research Partnership was founded in 2010 by a group of parents set out to save their children’s lives along with Jill and Eddie Vedder (Pearl Jam) with one bold audacious goal: cure the devastating and life-threatening genetic rare skin disease epidermolysis bullosa (EB) by 2030 and in the process pioneer an innovative business model to lead the way for 10,000 rare diseases that affect 400 million people.

Program Focus Areas

Grant-Making

Healthcare

Medical Research

Other Needs from This Organization

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