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Communications

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Analytics Data Entry Impact Measurement Information Architecture

Published Date

Posted February 11, 2026

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Health & Nutrition

Qualtrics Survey Migration and Setup

Project

Remote

Voices of Atrial Fibrillation Patients

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We are the only patient only 501(c)(3) organization that focuses on bringing patient centered outcomes and QoL (Quality of Life) and RWE (Real World Experiences) living with the most prevalent cardiac arrhythmia to the clinical environment. Educating patients and their care givers will have more impactful results vs. working one on one with patients. The first step is taking the pulse of the AFib community in the US , currently 10.5 million, and much more globally. This first step of our national survey sets the stage for our next tool a digital platform to then lead to a CER (Comparative Effective Research) study. But as I mentioned this first step is crucial and needs to me migrated to a survey platform that is the 10,000 lb. gorilla and bullet proof in the survey healthcare space.

VoAFP.org, Voices of Atrial Fibrillation Patients, a 501(c)(3) nonprofit organization, is dedicated to bringing the Voices or AFib patients to clinicians and researchers. Our BPRS, Broad Pragmatic Retrospective Study, if the first of 3 very exciting initiatives for the 10.5 million patients diagnosed with AFib and only growing.

Voices of Atrial Fibrillation Patients

Location

Far Rockaway, Delaware

Website

https://voafp.org/

Member Since

Nov 2023

Completed Taproot Plus Partnerships

Organization Mission

Voices of Atrial Fibrillation Patients (VoAFP.org) is a dedicated community founded on the belief that the collective experiences of individuals living with atrial fibrillation are invaluable in shaping the future of medical research and ultimately improving patient outcomes. Our mission is to provide a platform where AFib patients can share their stories, insights, and challenges, fostering a supportive environment that amplifies their voices and connects them with the medical research community. By bridging the gap between patients and researchers, we aim to facilitate a deeper understanding of AFib, promote patient-centered research, and drive innovation in treatments and care. Together, we empower AFib patients to become active contributors in shaping the future of AFib research, clinical outcomes with your care team, leading to enhanced treatments, improved quality of life, and a brighter tomorrow for all those affected by this condition.

Program Focus Areas

Healthcare

Nonprofit Capacity Building

Seniors

Youth Development

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